Things that make me tired

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Medical stuff.  Seriously.  Trying to get healthy is exhausting.  And expensive.  Why?  And now Congress is trying yet again to make it harder and exclude people like me from even getting the bare minimum health care coverage.

So after my fun diagnosis, I went to get blood drawn for more tests.   It was like 8 or 10 vials!  So I felt a bit run down after all of that blood left my body.   But my nephrologist is being thorough so I should be glad.  He’s checking for Lupus and I think trying to get a more precise diagnosis of my kidney disease.

I’m researching renal diets.  And my partner got me an instant pot for my birthday to make it easier for me to cook real food.  Yay!  There’s a lot of information out there and it’s taking me some time to sort through it all.  I suspect I’ll end up consulting with a nutritionist.   sigh

I still need to find a therapist.  I called a couple of people and found out they were not taking new patients.  I also need to get my eyes checked.  Oh, and the dentist.

In better news, I did submit an appeal for disability.  Now I have to worry myself sick with waiting for a decision.  I’m actually hoping I can just let it ride and not fret about it every damn day.  But that’s not how my brain works.  Anyway.

I got to see my wolfcub!  So that was a happy.  He gave me a pretty!

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~kermitflail~

He’s making many pretties to sell.  I’ll let you know where you can get yours.

Since it is Suicide Prevention Awareness Month  I want to remind you, that you are loved, you are worthwhile and you are not alone!  you-are-not-alone

  • If you are in crisis or are experiencing difficult or suicidal thoughts, call the National Suicide Hotline at 1-800-273 TALK (8255)
  • If you’re uncomfortable talking on the phone, you can also text NAMI to 741-741 to be connected to a free, trained crisis counselor on the Crisis Text Line.

 

 

If you want to lend me a hand, here are a couple of ways:

https://www.youcaring.com/HelpCherylThrive

PayPal

 

 

 

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Medical Stuff and my birfday

Friday, I went to see a nephrologist (kidney specialist).  He was very kind and reassuring.  I have more tests including and ultrasound on my kidneys.  I have Stage 3 CKD (Chronic Kidney Disease).  ~sigh~  My mom died from end stage renal failure which is Stage 5.  So I’m a little shaken.  My mind, of course, went immediately to the worst scenario possible. The doctor also wants to check for lupus and other things.  But he said many times that I shouldn’t worry at this point.  My numbers aren’t good but they are borderline.

My primary doc made a good call referring me to specialists.  I’m glad I switched!  She’s awesome.

Oh yeah, podiatrist wants me to get diabetic orthotics so I went and got my feet measured.  It’ll be around $250 for shoes and three pairs of inserts which should last for year or so.

Will need to have my current meds re-evaluated though, because a couple of them aren’t good for the kidneys.

At least I’ll have met my deductible for the year after all of this.   Why is trying to stay healthy so expensive?

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So, my birthday is fast approaching.  I’m tossing out my wishlists in case anyone wants to do the thing.

Amazon Wishlist

Crafting things Amazon Wishlist

ThinkGeek Wish List

 

 

Gratitude

Over the past few days, I have received so much support and generosity. I am humbled and frankly stunned to see how much my community, my chosen family, my tribe truly cares. Not just about me. I have seen beautiful expressions of support and love. I have teared up many times.

Y’all keep my hope a living, breathing thing. I am deeply grateful to each of you.

Health and such.

Just finished my physical eval for disability.  I am tired beyond words.  It was stressful in a myriad of ways.  The doc was really kind though.  I just hate being broken.  I’d much rather be healthy or at least functional.

Next up is the mental health eval.  I’m glad have a couple of weeks to silently freak out.  This is so hard.

However, there is good health news, my last A1C was 6.4 which is an improvement over the 7.0 from the two previous tests!  So there’s that.  I’d love to eventually get off the metformin.  I have plenty enough other pills to take.

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A quickie

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Not up for a lengthy essay today but I did want to tell y’all about something that happened today.   Through an interaction on social media, I was forcefully reminded about the stigma surrounding mental health.  I was distressed quite a bit about this.  It hit harder because it came from a person that I’d never thought would cotton to such an idea.  It floored me, frankly.  I’m still kinda reeling from it.

What it’s done, however, is to make me more resolved in speaking out about my condition, sharing resources and letting folks know that they are *not* alone!  I got your back!  You have value and worth and there is support out there.  There is help available. It is not a character flaw!

 

 

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The second thing I wanted to mention was that, well, I did it!  I created an Etsy shop!  Woohoo!  DragonWolfCrafts.  Now all I need to do is fill it with stuff for folks to buy.

 

Go me!

 

Thanks and have a happy week!

Help me with crafting supplies

Help support this blog!

Personal things

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Haven’t updated in a long while. So, got out and skimmed the pool. Trying to do this every day but not always succeeding. So that was exercise plus time in the sun (need that vit D). It’s 9000 degrees here and the air quality sucks so I’m actually avoiding spending a lot of time outside at the moment. When monsoon season kicks in, I’ll probably go spend time on the patio post deluge when the air is clear and stuff. Hope it happens soon but the forecast for the short term is just very sunny and very hot.

I’ve also taken to dancing around the living room for exercise. The birds really don’t like my taste in music though.

Been having pretty bad pain levels in my right hand, right hip and lower back. Not sure why but hopefully, more movement will ease things. Or I resort to drugs.

I think I posted somewhere about taking classes to try to keep my brane engaged. I started with a full slate but quickly realized that I was being unrealistic and setting myself up for failure. So, I now only have Art History which I am enjoying quite a lot.

I managed to read yesterday!  I devoured an entire book in a few hours.  It was great.  My review is here: Flowers of Luna by Jennifer Linsky

Plus I’ve watched the Black Panther Teaser Trailer many, many, many times.  I’ve also watched a slew of blerd reactions videos.  I. Can. NOT. Wait!  So excited for this.  I really want to make a Dora Milaje costume.

Actually, I’ve gotten the urge to Make.  I created a crafty things wishlist on Amazon here.

Well, that’s it.  Still not sleeping well.  Still anxiously stressed about money.  Still overwhelmed by the news of the day.  Still overwhelmed by all that needs doing around the house.

But I have an adorable kitten and a wonderful, cuddly cat who purr and frolic.

Finn and Pete

 

 

https://www.youcaring.com/HelpCherylThrive