For a long time, my memories of my childhood were vague and felt very, very distant. In part because I actively shied away from fully remembering. I’ve spoken of being raped when I was nine years old. However, as I approach 50, I find myself remembering happy times and a loving family. Memories of great adventures with cousins, large family gatherings and celebrations, church family, friends at school and in the neighborhood; all crowding forth in my mind lie whispers. It has moved me to look at the one family photo album that I managed to salvage after my mom’s death. So many great snapshots that made me smile and laugh. I want it back. I want it all back: the fun, the struggle, the pain, the love. All of it shaped who I am today.
I have reached out and reconnected with some family and friends on social media and will continue in my efforts. I’m enjoying seeing these amazing people and learning about who they are now. I really hope to return to NC sometime in 2018 to see them in person.
I feel like I was missing a part of me and now I am working to reclaim it. To make myself whole. Yes, it includes some really painful and sad parts but it also includes some really amazing, happy and loving parts as well.
To my friends and family, please share stories with me. I may not remember them all clearly but the more I hear, the more I remember and the more I feel myself.
Today I spent five hours sitting in a waiting room at the local DES office. It was crowded and noisy. Filled with all types of people: adults, singles, couples, parents with children. All there because we are desperate and needy. I saw dirty, unkempt people. And neat, clean people. And all those in between. I saw people lugging all of their wordly belongings to this place in hopes of maybe getting help.
As well, I saw parents entertaining their kids. Trying to make this long, often humiliating process a bit less trying and boring. I saw people helping people. Explaining the process to those new to it. Encouraging worn down parents with fussy kids.
By the end, I felt as though I’d joined a fellowship of a sort. I have a shiny new EBT card so I can now buy food and take some of the burden off my partner.
Sitting there, I was reminded of my childhood when we had to go check in with the government and assure them that no, we had not suddenly come into money and yes, we did still need food assistance. Food insecurity is a terrible way to live. Back then, we had actual color coded packets of vouchers. It was embarrasing to go shopping and pull those out. At least with the card, you don’t stand out as much.
I sat in my car for a moment and felt…something..nothing. I am dependent. Dependent on my partner. Dependent on my friends. Dependent on the meager services provided by the government. Dependent.
Medical stuff. Seriously. Trying to get healthy is exhausting. And expensive. Why? And now Congress is trying yet again to make it harder and exclude people like me from even getting the bare minimum health care coverage.
So after my fun diagnosis, I went to get blood drawn for more tests. It was like 8 or 10 vials! So I felt a bit run down after all of that blood left my body. But my nephrologist is being thorough so I should be glad. He’s checking for Lupus and I think trying to get a more precise diagnosis of my kidney disease.
I’m researching renal diets. And my partner got me an instant pot for my birthday to make it easier for me to cook real food. Yay! There’s a lot of information out there and it’s taking me some time to sort through it all. I suspect I’ll end up consulting with a nutritionist. sigh
I still need to find a therapist. I called a couple of people and found out they were not taking new patients. I also need to get my eyes checked. Oh, and the dentist.
In better news, I did submit an appeal for disability. Now I have to worry myself sick with waiting for a decision. I’m actually hoping I can just let it ride and not fret about it every damn day. But that’s not how my brain works. Anyway.
I got to see my wolfcub! So that was a happy. He gave me a pretty!
He’s making many pretties to sell. I’ll let you know where you can get yours.
I feel like I’m waiting, waiting, waiting. The requested evals are done. So I am waiting for some strangers in an office not too far from here to decide if I am broken enough to receive disability.
I am seeing pictures from my friends at Pennsic and my friends travelling to Worldcon and I am wistful. I want to travel. I want to dress up in funny clothes and have magical encounters.
I miss my Nia. She’s haunting my dreams. I hope she’s okay. Yes, I’ve tried to contact her but I have heard nothing back. I worry, too, about my friend Beth. I miss, as well, those friends and acquaintances from all of the places I’ve lived and visited over the years.
Worry is my old friend. I fret, as usual, about money. I fret about being useless. I couldn’t even hold the coffee carafe to fill it this morning. I had to use two hands. I had a spurt of activity feeding the critters (birds and kitties). I fed myself too. But then I was tired, tired. I just want a nap.
Or I want to be elsewhere. Or maybe someone else. My 25 year old self, maybe. Or in a different universe where I stayed in NC. Or finished my degree and did good things for humanity. Or never left Tucson. Or ran off to join a commune.
I hate, hate, hate having to ask others for help all the time. I remember when I was the one able to lend a hand. Buy a meal or run an errand.
I am depressed. I haven’t blogged about it or really written very explicitly about it in quite some time. It’s because I’m in a truly dark place and depression lies. It lies and tells me that no one cares, no one wants to hear about my feelings/struggles. It tells me that people are tired of my constant struggles with depression and finances and my whining about my life when obviously I have many good things.
I am worried and stressed and my depression lies and tells me that I’m being stupid/silly. Any problem I have is my own fault and I should just *fix* it already. I’m not sleeping or eating well (this is very bad due to my eating disorder past and I know it but my depression tells me that it doesn’t matter).
My depression tells me that everyone around me would be better off if I disappeared from the world entirely. That ceasing to exist would be a vast improvement to my current state of uselessness.
I’m wrestling with it, the darkness, my old friend, my depression brain. I’m trying a new antidepressant but it hasn’t had a chance to kick in yet. I’m applying music therapy and playing silly games and trying, trying, trying to shut out the noise, the lies. I’m mostly managing to get out of bed everyday so there’s that.
Sleep has been elusive but when I do sleep, I dream. Boy howdy do I dream. In vivid Technicolor with THX digital sound. In three-part harmony.
I’m assuming these dreams are created out of my anxieties, worries, concerns and other deeply, deeply buried issues from my psyche. Some of them are quite….disturbing.
I regularly dream about dead people. My dead relatives visit me often. I suppose I could go all woo and say that they are bringing me messages from the cosmos or that there is some deep philosophical and/or spiritual shit going on with those dreams. I also regularly dream about being part of a resistance/rebellion/super secret agent. Usually hiding from THEM(tm), fighting THEM(tm), saving refugees or an asset from THEM(tm). Plus I dream about bathrooms. Not sure why. Luxurious and large tubs and showers. Enough room to have a party in the bathroom with several people plus a sideboard for refreshments. And a full bar, of course. The type of bathroom Heinlein frequently included in his books.
Recent dreams include vacationing somewhere (the hotel room had a large hot tub in the center) and my partner having a heart attack while we are out touristing. He got taken to a hospital and I am assured he will be fine. But I am left alone and uncertain. Ugh. I woke up feeling really panicked and upset.
I’ve had several dreams of late that leave me feeling uneasy, upset and generally exhausted emotionally. My dreams take me to places that I do not wish to go and explore all the dark places of my mind.
I had serious, no tricking, night terrors when I was a child. I frequently would lie awake listening to music hoping to not sleep. I learned lucid dreaming and how to reshape my dreams from the incredibly terrifying things they were to something rather less icky.
I have a *LOT* of fears around protecting my family/loved ones and my ability/inability in that regard. It may come from losing my parents and brother when I was in my 20s. So many of my dreams were/are about threats to those people and my attempts to save them. The worst ones are where I am kept somehow from taking action. Those really put me in a poor headspace for the day(week..month)
So my head is full of darkness and it is seeping into my dreams.
I am so glad you have chosen to visit my website and I hope you will continue to come back to read more! Over the years, I have found ways to accommodate Multiple Sclerosis within my life and still be able to maintain a normal and happy life! I do believe that a positive attitude can make a huge difference! I truly hope that my website will reassure others that they are not alone with these battles, my goal is to help others!